I have three months till next visit to try and lose 10 pounds so I can have a buried tube put in for PD dialysis and then will be ready for it when it is needed or if I crash from sickness and lose my kidneys all of a sudden.
I'm happier knowing that I CAN do PD because I think it will be the least intrusive and easier to manage once I know what I have to do and get everything figured out.
I didn't really realize how much I DON'T want a fistula and hemo dialysis until I was sure that I don't HAVE to have it. WOW!
I hope it is still a long way away from me but I'm ready to face the journey if it is not.
Dialysis will be ok.
I CAN do this!!
From now on Aranesp will be taken every 2 weeks. ;)
Showing posts with label positive. Show all posts
Showing posts with label positive. Show all posts
Tuesday, December 11, 2012
Sunday, November 18, 2012
Tuesday
Tuesday hubby and I have an appointment...FINALLY.
I've only been waiting two and a half months now. :S
I didn't want to even do it. I tried to avoid it as long as possible but, the facts are the facts.
I need help.
So, cross fingers the appt. goes well and everything goes forward for me to receive disability help.
My medications just get more and more added trying to keep me in line and more and more expensive. Also, more dosages of insulin, and sooner or later I will also have to deal with dialysis of some sort.
I am trying hard not to be scared and worry about what's coming later.
What will be, will be.
I will face my decisions when they come and in the meantime try to stay positive and keep working on the things that I CAN do. No matter how difficult, no matter how frustrating, no matter how depressing, no matter whether or not I want to give up or not....just KEEP ON!
KEEP trying.
I've only been waiting two and a half months now. :S
I didn't want to even do it. I tried to avoid it as long as possible but, the facts are the facts.
I need help.
So, cross fingers the appt. goes well and everything goes forward for me to receive disability help.
My medications just get more and more added trying to keep me in line and more and more expensive. Also, more dosages of insulin, and sooner or later I will also have to deal with dialysis of some sort.
I am trying hard not to be scared and worry about what's coming later.
What will be, will be.
I will face my decisions when they come and in the meantime try to stay positive and keep working on the things that I CAN do. No matter how difficult, no matter how frustrating, no matter how depressing, no matter whether or not I want to give up or not....just KEEP ON!
KEEP trying.
Friday, July 6, 2012
Trying to Stay Positive
Things are getting out of whack...obviously the disease is progressing...my blood count is low so I have begun taking a hormone shot in addition to insulin to help with anemia...at least it is only once every 3 weeks...I begin a new BP med because my BP is elevated and has been for awhile now...my sugars are high so I have promised to KEEP trying to eat right and get more exercise and see in 2 months if it is helping at all otherwise I'll be beginning meal time insulin 4 times a day as well! :(
My gout meds have been lowered again so I MUST keep on track with fluid intake or that is going to HURT me...
I have a NEW Dr. he seems pleasant and competent but now I'll have to get used to him!
My creatinine is high and my kidney function has dropped again...when this started I was at 37% I believe and now I am at 22%...no wonder I get tired so fast!
What worries me quite a lot is that at 15% usually it's time for dialysis. :(
Yesterday I was in shock and VERY blue and distressed but today I am trying to remember that i DID lose 5 pounds so the diet changes and beginning exercises ARE working even if it is SLOW.
So I MUST and WILL keep on trying to eat right and get more active and keep dialysis at bay for as long as possible.
I want to TRAVEL! So I better get my butt in gear and make that happen SOON!!
My gout meds have been lowered again so I MUST keep on track with fluid intake or that is going to HURT me...
I have a NEW Dr. he seems pleasant and competent but now I'll have to get used to him!
My creatinine is high and my kidney function has dropped again...when this started I was at 37% I believe and now I am at 22%...no wonder I get tired so fast!
What worries me quite a lot is that at 15% usually it's time for dialysis. :(
Yesterday I was in shock and VERY blue and distressed but today I am trying to remember that i DID lose 5 pounds so the diet changes and beginning exercises ARE working even if it is SLOW.
So I MUST and WILL keep on trying to eat right and get more active and keep dialysis at bay for as long as possible.
I want to TRAVEL! So I better get my butt in gear and make that happen SOON!!
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