So...

I haven't checked in for awhile but I've been going along getting along and dealing with my life day by day...I am going three times a week to dialysis and so far things are on track. Graft works well...needles go in easy...very few alarms go off...I've sorted that I must eat so I have a nepro during treatment and my bp hasn't dropped the last few times so I think that's the trick. So I've gotten to a place where I can breath and endure and I've been reading a lot but I sometimes feel like I want MORE to do but I barely have enough time in a week to do any of the things I DO do...so I'm still sorting my life! But...I am still HERE!

Clinic Appt.

Finally had my clinic appt. and discussed bloodwork. A few changes in meds because of a couple of levels slightly off and have been referred to surgeon for my catheter surgery...waiting for him to call with surgery date. Apparently yet again I have a UTI (which i'm guessing is actually infection from a burst cyst because I DIDN'T know at all!!) however, am taking some antibiotics to clear this up.
So it kind of explains the general unwellness I have been feeling for a week or so and hopefully will get back on track again by next week! ;)
Other than that BP good, potassium, phosphorous and sugars all reasonable. It was calcium a little off and made a couple slight changes to fix it.
Doing ok!

31 Days of PKD Challenges: #11

PKD patients should have blood pressure lower that 130/80.
Mine today was 126/79 pulse 77

Get yours checked in the machine at the local pharmacy!

Trying to Stay Positive

Things are getting out of whack...obviously the disease is progressing...my blood count is low so I have begun taking a hormone shot in addition to insulin to help with anemia...at least it is only once every 3 weeks...I begin a new BP med because my BP is elevated and has been for awhile now...my sugars are high so I have promised to KEEP trying to eat right and get more exercise and see in 2 months if it is helping at all otherwise I'll be beginning meal time insulin 4 times a day as well! :(
My gout meds have been lowered again so I MUST keep on track with fluid intake or that is going to HURT me...
I have a NEW Dr. he seems pleasant and competent but now I'll have to get used to him!

My creatinine is high and my kidney function has dropped again...when this started I was at 37% I believe and now I am at 22%...no wonder I get tired so fast!

What worries me quite a lot is that at 15% usually it's time for dialysis. :(

Yesterday I was in shock and VERY blue and distressed but today I am trying to remember that i DID lose 5 pounds so the diet changes and beginning exercises ARE working even if it is SLOW.
So I MUST and WILL keep on trying to eat right and get more active and keep dialysis at bay for as long as possible.

I want to TRAVEL! So I better get my butt in gear and make that happen SOON!!